I woke at 7.30 to hear the alarm on my phone going off! The problem was I had left my phone downstairs last night. Jon was not in bed so I thought he would turn it off but after a few minutes it was still playing so I got up and went down to turn it off. Jon was asleep in the spare room downstairs.
Jon got up not long after I came down and said he had needed to attend to Bertie and as all of his 'stuff' is kept in the downstairs bathroom it was easier to stay down than struggle back up the stairs. He said he hadn't had a very good night sleep as he couldn't get comfy. I don't think the very long sleep in the afternoon helped either.
I made him some porridge for breakfast as he is not allowed his usual muesli yet and the other cereals I have are all high fibre. He wasn't keen to have porridge but really enjoyed it!
My friend Carol (Avon Carol) called today and was really surprised at Jon being home. She has a friend who was diagnosed at the same time as Jon but he is not doing very well at all. He won't eat properly and has lost a lot of weight and should have had surgery a few days after Jon but has put it off till October. She says he really is negative about everything which made me realise just how positive Jon had been throughout the whole time and I am sure this has helped a great deal with his recovery.
I did some washing and housework and we waited for the DN to come as she was bringing the new supply of bags. Unfortunately, she was very late today as she was busy and I was waiting to go to the supermarket and I could have done it early had I known.
The bag she brought are too small as the stoma has not shrunk enough yet so after dressing the wound on his tummy she said she would go and get more bags from the store and bring them back.
The bag situation is a bit difficult as, depending on the type of bag you use, disposable or ones you empty and change every couple of days, the prescription allows you only two a day hopefully when things settle that will be enough but it is very hit and miss at the moment so a lot of trial and error.
I went off to the supermarket and intended to go to Bayfair which is down near the Mount and all under cover and as I needed to look for more jogging bottoms for Jon I thought that would be easier. It was only when I found myself driving up 15th Avenue that I realised I was going in the wrong direction and heading for Tauranga!!! I think my car and my brain are so used to going to the hospital that is the way I went. I need to concentrate I think.
Never mind I just had to shop outdoors instead but I managed to get the jogging bottoms.
I then went to the supermarket and I now have to look carefully at what I buy to make sure there are no grains or seeds and I am now buying all the things we used to avoid. I managed to buy some breakfast cereals that don't have grins and that are not too sweet.
I made lunch once I got back as it was late and we were both hungry. Jon didn't have a sleep this afternoon. He is still very uncomfortable when he is sitting down and likes to stand up for a change but then gets tired.
The DN came back when I was out and brought the bags and they are OK. She walked him down to the end of the drive and back so he got some fresh air and later he went out on the deck for a few minutes. He is finding he gets very hot one minute and then when he takes a layer off he is cold.
I made shepherds pie for dinner which was a nice change and I did a sweet potato mash on the top and we had paw paw and crem fraiche for pudding.
Jon needed to change his bag before bed and while he can do the messy bit himself getting it back on is a bit difficult as it is still so swollen. The nurse did it this morning for him and he asked me if I minded doing it for him tonight. He was pretty impressed at how I got it on with no wrinkles! They are, and I can understand why, very sticky! I am sure all these things will get easier - one day!!
I am looking forward to my Red Cross day tomorrow.
WEATHER
Sunny spells but mostly cloudy 17 degrees
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